Having hypoparathyroidism means dealing with more than just low parathyroid hormone and calcium levels. Many patients have muscle cramps, tingling in their extremities, fatigue, muscle weakness, anxiety, and depression. These extra challenges make life difficult. After nearly 30 years of living with hypoparathyroidism, I developed stage 3 chronic…
Brave Butterfly: A Hypoparathyroidism Journey
— Bari Vapnek
Bari Gordon Vapnek was born in New York and relocated to Florida in 1995 after graduating from the University of Delaware with a BS in Business Administration. Hired as a director of new business development, she married in 1997 and, a year later, was diagnosed with the rare disease, hypoparathyroidism. Unaware of the implications of diagnosis, she persevered through challenging days, relying on a daily intake of calcium, her lifeline.
Having to leave her career, she became a mom, managing hypoparathyroidism and feeling isolated. In 2019 she discovered the Hypoparathyroidism Association. She became actively involved and assumed a position as a board member. Bari has written and spoken publicly about her journey. She believes her column can help those who feel isolated in their diagnosis.
Featured Post
“Slow down, you crazy child/ And take the phone off the hook and disappear for a while/ It’s all right, you can afford to lose a day or two/ When will you realize Vienna waits for you?” — Billy Joel, “Vienna” Living with hypoparathyroidism is unpredictable, like being on…
Explore more columns
Discussion
Discussion
Discussion