Having a chronic illness feels a little like being a hostage negotiator. It’s my functionality and I trapped behind an unpredictable chronic illness that’s got a chip on its shoulder and is out for blood. The alarm has been tripped and the medics are outside, but it doesn’t change the…
“We can’t control the storms that come our way, but we can control how we navigate through them.” — Fernanda Melchor’s novel “Hurricane Season” It’s almost summer here in the Sunshine State of Florida! It’s hot, humid, and rains daily. Floridians know to bring an umbrella, SPF, and a water…
“To be trusted is a greater compliment than being loved.” — George MacDonald Building trust takes years, yet it can shatter in moments. This fragility can be a heavy burden. As Brian Keigley, president of Bionews (the publisher of this site), recently wrote on LinkedIn, “Trust isn’t a…
When I was a teenager, adults used to tell me time sped up every year. I scoffed in that way kids do when they don’t believe an adult, but I swear these days that time is nonsensical. This week marks my two-year anniversary on Yorvipath (palopegteriparatide), the first and only…
“Knowledge is the light of the mind.” — University of Delaware’s motto May 27, 1995, was a significant day in my life. It was the day I graduated from the University of Delaware, a momentous occasion held at the school’s football stadium in Newark. The hot and sunny Memorial Day…
I was having an incredible week! I’d pushed my body to the limit to meet my book deadline and had finished on time. I took part in a rare career opportunity and went to sleep on Tuesday night celebrating. Wednesday morning, I had to make a call about the…
‘To be an activist is to speak. To be an advocate is to listen. Society can’t move forward without both.” — activist Eva Maria Lewis When I was diagnosed with the rare endocrine disorder hypoparathyroidism in 1998, I felt like I was the only person in the world…
When I walk into the small, LGBTQ-owned salon that has seen my best and worst hypoparathyroidism days, I’m always relieved that I can just be me. Not only is it a place of safety and comfort for me as a queer woman, but also as a person with a…
“You’re never too old to need your mom.” — Drew Vapnek Life with hypoparathyroidism, more simply nicknamed hypopara, is so unpredictable. I never know if I’ll have a good or bad day. The past few months have been a roller coaster as I wean down from my 60 mcg…
I have a mortal enemy. We circle each other often. I’m consistently trying to de-escalate and avoid, while they’re popping up at the most surprising moments, rendering me incapacitated. I spend hundreds of dollars a month trying to protect myself, hoping I continue to be successful in my lifelong fight.
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