Analysis of hypoparathyroidism symptom diaries is an appropriate measure of disease symptoms and how they affect patients’ quality of life, a study shows. The research article, “Psychometric evaluation of the hypoparathyroidism symptom diary,” was published in Dove Press. Hypoparathyroidism symptom burden is…
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A meticulous surgical technique based on parathyroid autotransplantation, and not vitamin D supplementation, is more efficient to preserve parathyroid function and avoid postoperative hypoparathyroidism following thyroid surgery, a study shows. The study, “Can preoperative vitamin D deficiency predict postoperative hypoparathyroidism following thyroid surgery?…
Postmenopausal women with post-surgical hypoparathyroidism treated with thyroid suppressors are less likely to experience bone loss compared to postmenopausal women with a normal parathyroid function, a study has found. The study, “Trabecular bone score and bone mineral density in patients with postsurgical hypoparathyroidism after total thyroidectomy for differentiated thyroid carcinoma,”…
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures — at exactly the same time as the promise of new but expensive therapies to treat rare diseases has never been greater. That’s the paradox faced by pharmaceutical companies as well as patient advocacy groups in…
Patients with hypoparathyroidism who experience severe symptoms and a low quality of life, despite receiving regular medication, would consider a parathyroid transplant as an appealing treatment option, a study has found. The study, “Patients’ views about parathyroid transplantation for post-thyroidectomy hypoparathyroidism,…
Alizé Pharma 3, a biopharmaceutical company focused on developing therapies for rare diseases, including hypoparathyroidism, is making efforts to become a leading company focusing on rare endocrine and metabolic diseases. The company will establish operations in Europe and North America to achieve faster global regulatory approvals for leading candidate…
Maintaining serum calcium levels within the low normal reference range, checking them closely, and assuring a coordinated approach among health professionals are among the recommendations for pregnant women with hypoparathyroidism, according to a review study. The study, “Hypoparathyroidism in Pregnancy: Review and Evidence Based Recommendations for Management,”…
Entera Bio’s investigational parathyroid hormone compound called Oral PTH (1-34) appears to be able to increase calcium levels in patients with hypoparathyroidism, interim results from a Phase 2 trial show. It can also increase blood levels of active vitamin D and reduce phosphate levels — two other hallmarks…
People with chronic hypoparathyroidism are at higher risk of developing other illnesses — including heart disease, stroke, infections, and epilepsy — than the general population, especially those whose disease did not result from neck surgery, a study finds. The study, “Increased Mortality and Morbidity in Patients with Chronic Hypoparathyroidism: A population…
#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range of hot-button issues, from the Orphan Drug Tax Creditand affordable health insurance to future funding for rare disease research. Yet “whether Democrats take over the House or Senate, or…
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