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New Patient-derived Questionnaire May Better Assess Quality of Life for Those With Hypoparathyroidism, Study Reports

A new questionnaire devised from complaints of patients with hypoparathyroidism may better assess quality of life and the characteristic symptoms of the disorder, according to a study. The study, “The HPQ—Development and First Administration of a Questionnaire for Hypoparathyroid Patients,” was published in the journal JBMR Plus. Among…

HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access to lifesaving treatments, the nation’s highest-ranking health official said. “We have to think about how our financing system can protect those with serious and rare illnesses.