Reflections on gratitude and hope for the new year
I've faced ups and downs in 2025, but community keeps me going
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“It was the best of times, it was the worst of times.” — Charles Dickens in “A Tale of Two Cities”
Describing my year as both the best and worst of times may seem contradictory, but it truly reflects my experience. Similar to the theme in Charles Dickens’ classic novel, my year has been a blend of progress and suffering, while I’ve persevered and tried to maintain a positive outlook. This powerful contrast captures the essence of my journey, allowing me to remain hopeful despite facing despair.
For me, living with hypoparathyroidism has been a journey filled with ups and downs, often accompanied by symptoms like brain fog, fatigue, muscle cramps, and tingling sensations.
Looking back on 2025, I am genuinely grateful for the growth I’ve experienced through life’s challenges. Recognizing how resilience has helped me adapt and improve makes me feel strong and motivated.
Despite facing five hospitalizations and various health challenges that I attribute to a decrease in the dosage of my medication, Yorvipath (palopegteriparatide), I remained resilient and determined to embrace life fully in 2025. Each obstacle strengthened my resolve and positivity. I may have been knocked down five times, but I got up six, and for that, I am proud of myself.
This year has been truly eye-opening. I learned that it’s OK to ask for help when I need it. I recognized that my hypoparathyroidism treatment isn’t perfect, yet ongoing research and clinical trials for investigational drugs give me hope that I will have more options for managing my rare disease in the future. I also discovered that sometimes life’s unpredictable moments can lead to its greatest rewards.
Grateful for opportunities
I was honored to be asked to write about my life for Hypoparathyroidism News, an opportunity that aligns with my mission to reduce the isolation often felt by others living with this condition. I wholeheartedly embraced the chance to connect with others and share my story. I have learned to dig deep and share my fears and struggles — not just for myself, but also to show others that they are not alone. I find joy in sharing my experiences to demonstrate that we are all in this together.
Columnist Bari Vapnek gets ready to ring in the new year bolstered by support from the community. (Courtesy of Bari Vapnek)
Writing this column has also had a positive impact on my mental health. I used to try to conceal my disease and emotions, but now I feel empowered to share both my triumphs and my challenges. Embracing my vulnerability allows me to connect more deeply with others and reminds me that growth is a continuous journey.
By sharing my story, I aim to show others with hypoparathyroidism, along with their caregivers, that emotional resilience is essential for moving forward. I am grateful for the opportunity to illustrate how we can navigate our journeys and grow stronger together, empowering everyone to face challenges with courage.
As this “Brave Butterfly” shares her last column of the year, I am humbled by the outpouring of emails and other messages from members of the community expressing their gratitude for my open and honest narratives. I want to inspire those who feel lost, isolated, or in need of understanding, reminding them that they are not alone. Connecting through shared experiences can foster a sense of belonging and support.
I wish all my readers a happy and healthy holiday season and a new year filled with love, hope, and prosperity. As 2026 approaches, I envision a sunrise of calcium-rich light, filled with possibilities. I will continue to spread my wings of hope, filled with happiness, bravery, and pride for all of us through the best and worst of times! I hope my journey as a brave butterfly encourages others to embrace their own strength and grow stronger in the new year!
Note: Hypoparathyroidism News is a strictly news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Hypoparathyroidism News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to hypoparathyroidism.
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