“Don’t let your circumstances define your future.” — Popular saying If I had one wish, it would be a world without hypoparathyroidism. Realistically, that is as unlikely as winning the lottery, but as the Grateful Dead said, “Without love in the dream, it will never come true.” On June…
Brave Butterfly: A Hypoparathyroidism Journey
— Bari Vapnek
Bari Gordon Vapnek was born in New York and relocated to Florida in 1995 after graduating from the University of Delaware with a BS in Business Administration. Hired as a director of new business development, she married in 1997 and, a year later, was diagnosed with the rare disease, hypoparathyroidism. Unaware of the implications of diagnosis, she persevered through challenging days, relying on a daily intake of calcium, her lifeline.
Having to leave her career, she became a mom, managing hypoparathyroidism and feeling isolated. In 2019 she discovered the Hypoparathyroidism Association. She became actively involved and assumed a position as a board member. Bari has written and spoken publicly about her journey. She believes her column can help those who feel isolated in their diagnosis.
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“It’s like déjà vu all over again.” — Yogi Berra Getting on a plane recently brought back a rush of familiar feelings. I remembered 2019, when I took this same flight from Florida to New York City for my first clinical trial appointment. I felt like I was reliving the…
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