Updates

News Trial Assesses Benefits of New Parathyroid Auto-Transplantation Site for Hypoparathyroidism
News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
News Hypoparathyroidism Symptom Diaries Are Reliable, Valid, Study Says
News Postoperative Parathyroid Hormone Levels Predict Hypoparathyroidism Risk
News, Recently Published Post-surgical Hypoparathyroidism Protects Against Effects of Thyroid Suppressors on Bone, Study Finds
News Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
News Many Hypoparathyroidism Patients Would Consider Parathyroid Transplant, Survey Shows
News Alizé Pharma 3 Aims to Become Leader in Treatment of Rare Endocrine and Metabolic Disease
News Pregnant Women Should Monitor Serum Calcium Levels, Researchers Say
News Entera Bio’s Parathyroid Hormone Therapy Shows Potential in Early Phase 2 Results
News Chronic Hypoparathyroidism Linked to Higher Risk of Serious Illnesses, Study Finds
News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
News Risk of Complications After Thyroidectomy Not Increased in Older Patients, Study Reports
News CHOP Physician Wins ASBMR Award for Bone and Mineral Metabolism Research
News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
News Temporary Hypoparathyroidism Common After Surgery in Thyroiditis Patients, Study Finds
News Injection of Carbon Nanoparticles During Thyroid Cancer Surgery Helps Prevent Hypoparathyroidism
News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington
News Measures Taken 24 Hours After Thyroidectomy Can Predict Permanent Hypoparathyroidism, Study Finds
News Gene Mutation Linked to Hypoparathyroidism, Certain Features in Sanjad-Sakati Syndrome Patients, Study Reports
News Primary Hypoparathyroidism Discovered as a Result of Dengue Fever Infection
News Plasma Gel Could Be Used to Deliver PTH-producing Cells to Treat Hypoparathyroidism, Study Shows
News Active Surveillance Best in Thyroid Cancer to Avoid Hypoparathyroidism, Study Finds
News Hypoparathyroidism Patients on Hormone Therapy Should Be Monitored for Renal Calcium Deposits, Study Finds
News Hypoparathyroidism Should Be Considered When Patient Has Seizures, Case Study Says
News Long‐term Use of Specific Hormone in Hypoparathyroidism Benefits Bone Remodeling, Study Finds
News New Orally Available Compound Seen to Increase Activity of Human Parathyroid Hormone Receptor 1
News Ascendis’ TransCon PTH Granted Orphan Drug Status to Treat Hypoparathyroidism
News Natpara Slows Kidney Dysfunction in Chronic Hypoparathyroidism, New Data Show
News Atypical Kidney Lesions Linked to Rare Hypoparathyroidism, Case Report Suggests
News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases
News Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find
News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges
News Specific Transplant Surgery Prevents Hypoparathyroidism in Cancer Patients Needing Thyroidectomy, Study Finds
News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35
News #ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say
News Lower Doses of Parathyroid Hormone Effective for Some With Hypoparathyroidism
News Mirror-image Peptides May Lead to Longer-Lasting Therapies, Study Finds
News Shire Presented Positive New Data on Natpara for Hypoparathyroidism at Conference
News Phase 1 Data Promising for TransCon PTH to Potentially Treat Hypoparathyroidism
News Shire Plans Phase 4 Clinical Trial of Parathyroid Hormone Therapy
News Reduced Parathyroid Hormone Levels May Be Beneficial in PHP Patients, Study Finds
News Hypoparathyroidism May Lead to Rare Neurological Disease, Case Study Suggests
News Emergency Card Helpful for Hypoparathyroidism Patients During an Acute Crisis, Study Says

February 13, 2019February 13, 2019
Trial Assesses Benefits of New Parathyroid Auto-Transplantation Site for Hypoparathyroidism

A team of Chinese researchers is conducting a clinical trial to test a new parathyroid auto-transplantation site for patients with hypoparathyroidism. The study protocol was ... Read more
February 11, 2019
Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions ... Read more
February 6, 2019February 6, 2019
Hypoparathyroidism Symptom Diaries Are Reliable, Valid, Study Says

Analysis of hypoparathyroidism symptom diaries is an appropriate measure of disease symptoms and how they affect patients’ quality of life, a study shows. The research ... Read more
January 30, 2019January 30, 2019
Postoperative Parathyroid Hormone Levels Predict Hypoparathyroidism Risk

A meticulous surgical technique based on parathyroid autotransplantation, and not vitamin D supplementation, is more efficient to preserve parathyroid function and avoid postoperative hypoparathyroidism following thyroid ... Read more
January 2, 2019January 8, 2019
Post-surgical Hypoparathyroidism Protects Against Effects of Thyroid Suppressors on Bone, Study Finds

Postmenopausal women with post-surgical hypoparathyroidism treated with thyroid suppressors are less likely to experience bone loss compared to postmenopausal women with a normal parathyroid function, a ... Read more

News

Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
December 21, 2018December 20, 2018
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures ...
News

Many Hypoparathyroidism Patients Would Consider Parathyroid Transplant, Survey Shows
December 19, 2018December 19, 2018
Patients with hypoparathyroidism who experience severe symptoms and a low quality of life, despite receiving ...
News

Alizé Pharma 3 Aims to Become Leader in Treatment of Rare Endocrine and Metabolic Disease
December 12, 2018December 12, 2018
Alizé Pharma 3, a biopharmaceutical company focused on developing therapies for rare diseases, including ...
News

Pregnant Women Should Monitor Serum Calcium Levels, Researchers Say
December 5, 2018December 5, 2018
Maintaining serum calcium levels within the low normal reference range, checking them closely, and ...
News

Entera Bio’s Parathyroid Hormone Therapy Shows Potential in Early Phase 2 Results
November 28, 2018November 28, 2018
Entera Bio’s investigational parathyroid hormone compound called Oral PTH (1-34) appears to be able ...
News

Chronic Hypoparathyroidism Linked to Higher Risk of Serious Illnesses, Study Finds
November 8, 2018November 8, 2018
People with chronic hypoparathyroidism are at higher risk of developing other illnesses — including heart ...

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#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
October 31, 2018October 29, 2018
With the U.S. midterm elections now less than two weeks away, patient advocacy groups ...
Risk of Complications After Thyroidectomy Not Increased in Older Patients, Study Reports
October 24, 2018October 24, 2018
Advanced age does not increase the risk of postoperative complications in patients older than ...
CHOP Physician Wins ASBMR Award for Bone and Mineral Metabolism Research
October 17, 2018October 17, 2018
Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
October 10, 2018
Temporary Hypoparathyroidism Common After Surgery in Thyroiditis Patients, Study Finds
October 3, 2018October 3, 2018
Injection of Carbon Nanoparticles During Thyroid Cancer Surgery Helps Prevent Hypoparathyroidism
September 26, 2018September 26, 2018

#NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington
September 21, 2018September 21, 2018
More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to ...
Measures Taken 24 Hours After Thyroidectomy Can Predict Permanent Hypoparathyroidism, Study Finds
September 19, 2018September 19, 2018
Gene Mutation Linked to Hypoparathyroidism, Certain Features in Sanjad-Sakati Syndrome Patients, Study Reports
September 12, 2018September 12, 2018
Primary Hypoparathyroidism Discovered as a Result of Dengue Fever Infection
September 5, 2018September 5, 2018

Plasma Gel Could Be Used to Deliver PTH-producing Cells to Treat Hypoparathyroidism, Study Shows
August 29, 2018August 29, 2018
A plasma gel scaffold, easily injected and capable of delivering cells that produce and ...
Active Surveillance Best in Thyroid Cancer to Avoid Hypoparathyroidism, Study Finds
August 22, 2018August 22, 2018
Hypoparathyroidism Patients on Hormone Therapy Should Be Monitored for Renal Calcium Deposits, Study Finds
August 8, 2018August 8, 2018

News

Hypoparathyroidism Should Be Considered When Patient Has Seizures, Case Study Says
August 1, 2018August 1, 2018
Diagnoses other than epilepsy, including hypoparathyroidism, should be considered when a patient arrives at the ...
News

Long‐term Use of Specific Hormone in Hypoparathyroidism Benefits Bone Remodeling, Study Finds
July 11, 2018July 11, 2018
Long-term treatment with the human recombinant parathyroid hormone (rhPTH) in patients with hypoparathyrodism causes significant and ...
News

New Orally Available Compound Seen to Increase Activity of Human Parathyroid Hormone Receptor 1
June 27, 2018June 27, 2018
A new, small, orally available compound has the potential to regulate abnormal calcium levels often ...
News

Ascendis’ TransCon PTH Granted Orphan Drug Status to Treat Hypoparathyroidism
June 20, 2018June 20, 2018
The U.S. Food and Drug Administration has granted orphan drug designation to TransCon PTH, an investigative ...
News

Natpara Slows Kidney Dysfunction in Chronic Hypoparathyroidism, New Data Show
June 13, 2018June 13, 2018
Treatment with the injectable parathyroid hormone Natpara slows the decline in kidney function in patients with ...
News

Atypical Kidney Lesions Linked to Rare Hypoparathyroidism, Case Report Suggests
June 6, 2018June 6, 2018
Atypical kidney lesions in adult patients may be caused by a mutation associated with ...
News

US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases
June 4, 2018June 4, 2018
As President Trump signed the recently passed Right to Try legislation into law in ...
News

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find
May 30, 2018May 30, 2018
Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for ...
News

#ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges
May 29, 2018May 29, 2018
Finding treatments and potential cures for rare diseases is crucial, but so is the ...

May 30, 2018May 30, 2018

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

News

Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more

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