Updates

July 8, 2020July 8, 2020
ProLynx Awarded NIH Grant to Develop Long-acting PTH Therapy

ProLynx has been awarded a small business innovation research grant from the National Institutes of Health (NIH) to develop its long-acting parathyroid hormone (PTH) ... Read more
July 1, 2020July 1, 2020
Continuous PTH Infusion May Benefit Non-Responding Patients, Case Report Finds

People with hypoparathyroidism whose disease cannot be sustainably controlled with conventional treatment and parathyroid hormone (PTH) infusions may benefit from a continuous PTH infusion ... Read more
June 26, 2020June 26, 2020
What Is Pseudohypoparathyroidism (PHP)?

Hypoparathyroidism is a rare medical condition in which the body cannot produce enough parathyroid hormone (PTH) from the parathyroid glands. In contrast, people with ... Read more
June 24, 2020June 24, 2020
Chronic Hypoparathyroidism Due to Thyroid Surgery May Be Fairly Common

People who undergo surgery to remove the entire thyroid gland have a much higher incidence of chronic hypoparathyrodism than previously reported, with younger patients ... Read more
June 22, 2020June 22, 2020
Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those with rare diseases during the COVID-19 pandemic, the organization ... Read more

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May 30, 2018May 30, 2018

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

News

Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more

Updates

ProLynx Awarded NIH Grant to Develop Long-acting PTH Therapy

Continuous PTH Infusion May Benefit Non-Responding Patients, Case Report Finds

What Is Pseudohypoparathyroidism (PHP)?

Chronic Hypoparathyroidism Due to Thyroid Surgery May Be Fairly Common

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Tips for Managing Fatigue When You Have Hypoparathyroidism

Alizé Pharma 3 Rebrands as Amolyt Pharma, Plans AZP-3601 Trial

Hypoparathyroidism and Pregnancy

Coalition Will Address Racial Disparities in Rare Disease Communities

Inadequate Medical Care Still a Major Struggle in US, Survey Finds

Brain Fog and How to Deal With It When You Have Hypoparathyroidism

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Support Groups for People Affected by Hypoparathyroidism

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Hypoparathyroidism with Pain Mistaken for Type of Arthritis, Case Report Finds

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Differences Between Primary and Secondary Hypoparathyroidism

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Mood Disorders and Hypoparathyroidism

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Takeda Offers Assurances on Natpara Supplies During COVID-19 Pandemic

Calcific Tendonitis May Be Complication of Hypoparathyroidism

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Hypoparathyroidism Increases Blood Pressure and Blood Vessel Stiffness, Study Shows

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

TransCon PTH Holds Promise in Treating Hypoparathyroidism, Phase 2 Trial Shows

Hypoparathyroidism and Nutrition

What Are the Different Types of Hypoparathyroidism?

Supplement Need After Thyroid Cancer Surgery Linked to Poorer Life Quality

Hypoparathyroidism as an Autoimmune Disease

Undetectable PTH in Blood May Be Risk Factor for Permanent Hypoparathyroidism Following Neck Surgery

NORD’s Advice on COVID-19: You’re Stronger Than You Think

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

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ProLynx Awarded NIH Grant to Develop Long-acting PTH Therapy

Continuous PTH Infusion May Benefit Non-Responding Patients, Case Report Finds

What Is Pseudohypoparathyroidism (PHP)?

Chronic Hypoparathyroidism Due to Thyroid Surgery May Be Fairly Common

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Tips for Managing Fatigue When You Have Hypoparathyroidism

Alizé Pharma 3 Rebrands as Amolyt Pharma, Plans AZP-3601 Trial

Hypoparathyroidism and Pregnancy

Coalition Will Address Racial Disparities in Rare Disease Communities

Inadequate Medical Care Still a Major Struggle in US, Survey Finds

Brain Fog and How to Deal With It When You Have Hypoparathyroidism

Subscribe to our mailing list

Support Groups for People Affected by Hypoparathyroidism

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Hypoparathyroidism with Pain Mistaken for Type of Arthritis, Case Report Finds

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Video Games Connect Chronically Ill Children Isolated at Home, Hospital

Differences Between Primary and Secondary Hypoparathyroidism

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Mood Disorders and Hypoparathyroidism

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Takeda Offers Assurances on Natpara Supplies During COVID-19 Pandemic

Calcific Tendonitis May Be Complication of Hypoparathyroidism

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Hypoparathyroidism Increases Blood Pressure and Blood Vessel Stiffness, Study Shows

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

TransCon PTH Holds Promise in Treating Hypoparathyroidism, Phase 2 Trial Shows

Hypoparathyroidism and Nutrition

What Are the Different Types of Hypoparathyroidism?

Supplement Need After Thyroid Cancer Surgery Linked to Poorer Life Quality

Hypoparathyroidism as an Autoimmune Disease

Undetectable PTH in Blood May Be Risk Factor for Permanent Hypoparathyroidism Following Neck Surgery

NORD’s Advice on COVID-19: You’re Stronger Than You Think

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

Pin It on Pinterest