Updates

February 26, 2021February 26, 2021
Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of challenges over his 37 years of life. But from a ... Read more
February 26, 2021February 26, 2021
Seizure Diaries for Hypoparathyroidism

Seizures can be part of life for up to 70% of patients with hypoparathyroidism. Hypoparathyroidism develops when your parathyroid glands don’t produce enough parathyroid hormone. ... Read more
February 24, 2021February 24, 2021
Vitamin D May Reduce Rate of Hypoparathyroidism After Thyroid Surgery

Vitamin D supplementation before total thyroid removal may reduce the frequency of permanent hypoparathyroidism after surgery, a clinical study suggests. However, as the difference compared ... Read more
February 22, 2021February 22, 2021
Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1, will feature panel discussions, patient stories, research ... Read more
February 19, 2021February 19, 2021
Seizure Action Plan for Hypoparathyroidism

Seizures, which can be a common occurrence for people with hypoparathyroidism, require appropriate care. To ensure that you or your child get the proper treatment ... Read more

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May 30, 2018May 30, 2018

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

News

Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence of ... Read more

Updates

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Seizure Diaries for Hypoparathyroidism

Vitamin D May Reduce Rate of Hypoparathyroidism After Thyroid Surgery

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Seizure Action Plan for Hypoparathyroidism

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Low Calcium May Cause Stridor Following Thyroid Surgery

Treatment Plan for Hypoparathyroidism

Pandemic Won’t Stop Rare Disease Day on Feb. 28

Warning Signs of Seizures

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

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Persistent Hypoparathyroidism May Merit APS-1 Diagnosis

Making Every Doctor Visit Count When You Have Hypoparathyroidism

Immunotherapy-linked Hypoparathyroidism Shows Need to Monitor Calcium

COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say

5 Main Symptoms of Hypoparathyroidism

NORD’s Caregiver Respite Program Continues Through Pandemic

TransCon PTH Phase 3 Clinical Trial Moving Forward

How to Help Support a Family Member With Hypoparathyroidism

AZP-3601 Earns FDA’s Orphan Drug Designation

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Hypoparathyroidism and Exercise

First Latin America Hypoparathyroidism Study Finds Poor Disease Control

Looking After Your Heart When You Have Hypoparathyroidism

Long-term Forteo Found to Safely Treat Hypoparathyroidism in Boy With Jacobsen Syndrome

How Hypoparathyroidism May Affect Your Heart

Hypoparathyroidism and Seizures

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

Uncontrolled Hypoparathyroidism Leads to Substantial Burden of Illness, Surveyed Physicians Say

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

Specific Thyroid Surgery Procedures Dictate Later Risk of Hypoparathyroidism

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Seizure Diaries for Hypoparathyroidism

Vitamin D May Reduce Rate of Hypoparathyroidism After Thyroid Surgery

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Seizure Action Plan for Hypoparathyroidism

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Low Calcium May Cause Stridor Following Thyroid Surgery

Treatment Plan for Hypoparathyroidism

Pandemic Won’t Stop Rare Disease Day on Feb. 28

Warning Signs of Seizures

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

Subscribe to our mailing list

Persistent Hypoparathyroidism May Merit APS-1 Diagnosis

Making Every Doctor Visit Count When You Have Hypoparathyroidism

Immunotherapy-linked Hypoparathyroidism Shows Need to Monitor Calcium

COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say

5 Main Symptoms of Hypoparathyroidism

NORD’s Caregiver Respite Program Continues Through Pandemic

TransCon PTH Phase 3 Clinical Trial Moving Forward

How to Help Support a Family Member With Hypoparathyroidism

AZP-3601 Earns FDA’s Orphan Drug Designation

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Hypoparathyroidism and Exercise

First Latin America Hypoparathyroidism Study Finds Poor Disease Control

Looking After Your Heart When You Have Hypoparathyroidism

Long-term Forteo Found to Safely Treat Hypoparathyroidism in Boy With Jacobsen Syndrome

How Hypoparathyroidism May Affect Your Heart

Certain Cancer Therapies May Rarely Lead to Hypoparathyroidism, Case Study Reports

Hypoparathyroidism and Seizures

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

Uncontrolled Hypoparathyroidism Leads to Substantial Burden of Illness, Surveyed Physicians Say

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

Specific Thyroid Surgery Procedures Dictate Later Risk of Hypoparathyroidism

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find