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Featured News

Navigating hypopara with the Year of the Horse as my inspiration

“Courage is being scared to death, but saddling up anyway.” — a popular saying often attributed to John Wayne Red lanterns shimmer above bustling Chinatown streets, their light flickering against a sea of red envelopes and golden paper dragons. The Chinese Lunar New Year began Feb. 17, symbolizing the…

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Having hypoparathyroidism helped me view friendships as a ‘spectrum of love’

It’s 4:30 a.m. and I’m staring at the wall, willing my brain and body to go back to sleep. I can’t tell what awakened me — a sound outside, a bad dream, the insistent pain in my hip and shoulder — but it doesn’t matter. With a sigh, I reach…

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Celebrating my one-year anniversary with Hypoparathyroidism News

This week is the one-year anniversary of my first column with Hypoparathyroidism News! It’s been an incredible experience, and I’m so thankful to have been given the opportunity to share my rare disease journey. Looking back over the past 43 columns, I’m emotional at these snapshots of my life.

A person wearing overalls weighs two medicine choices, with an oral medication seen above one hand and a syringe above the other.
News

Companies team to develop once-a-day hypoparathyroidism pill

Entera Bio and Opko Health are teaming up to develop a once-daily oral treatment for hypoparathyroidism, known as a long-acting parathyroid hormone analog (LA-PTH). “Preclinical data of oral LA-PTH suggests that this program holds the potential to transform the hypoparathyroidism landscape,” Miranda Toledano, CEO of Entera, said…

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Featured ColumnsHow Yorvipath gave a first patient in Ireland a second chance

Columnist Heather Novak interviews her friend Debz Leavey, the first person in Ireland to receive Yorvipath for hypoparathyroidism.

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Perspectives

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    Navigating hypopara with the Year of the Horse as my inspiration

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    Having hypoparathyroidism helped me view friendships as a ‘spectrum of love’

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    Celebrating my one-year anniversary with Hypoparathyroidism News

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    The Olympics inspire me to go for gold, despite hypoparathyroidism

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    How Yorvipath gave a first patient in Ireland a second chance

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    Bravely riding the roller coaster of life with hypoparathyroidism

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