Updates

January 15, 2021January 15, 2021
How to Help Support a Family Member With Hypoparathyroidism

Hypoparathyroidism can have a negative effect on many aspects of a patient’s daily life — but you can help support a family member who ... Read more
January 13, 2021January 13, 2021
AZP-3601 Earns FDA’s Orphan Drug Designation

The U.S. Food and Drug Administration (FDA) has granted orphan drug designation to AZP-3601, an investigational therapy for hypoparathyroidism by Amolyt Pharma. The designation is given ... Read more
January 12, 2021January 12, 2021
NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to speak at its upcoming virtual ... Read more
January 8, 2021January 8, 2021
Hypoparathyroidism and Exercise

Exercise is an important part of a healthy lifestyle and can offer many benefits. If you have hypoparathyroidism, however, you should be careful because ... Read more
January 6, 2021January 6, 2021
First Latin America Hypoparathyroidism Study Finds Poor Disease Control

People with hypoparathyroidism in Argentina, particularly those with kidney problems and high levels of phosphate in the blood, frequently experience inadequate disease control, a ... Read more

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May 30, 2018May 30, 2018

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

News

Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more

Updates

How to Help Support a Family Member With Hypoparathyroidism

AZP-3601 Earns FDA’s Orphan Drug Designation

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Hypoparathyroidism and Exercise

First Latin America Hypoparathyroidism Study Finds Poor Disease Control

Looking After Your Heart When You Have Hypoparathyroidism

Long-term Forteo Found to Safely Treat Hypoparathyroidism in Boy With Jacobsen Syndrome

How Hypoparathyroidism May Affect Your Heart

Hypoparathyroidism and Seizures

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

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Uncontrolled Hypoparathyroidism Leads to Substantial Burden of Illness, Surveyed Physicians Say

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

Specific Thyroid Surgery Procedures Dictate Later Risk of Hypoparathyroidism

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Weight Loss Surgery May Present Problems for Hypoparathyroidism Patients, Report Asserts

Staying Motivated With a Chronic Disease Like Hypoparathyroidism

Hypoparathyroidism Risk Increases After Thyroid, Lymph Node Surgery, Study Reports

FAQs about Hypoparathyroidism

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

FAQs About Natpara for Hypoparathyroidism

TransCon PTH Granted Orphan Drug Designation in Europe

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

Hypoparathyroidism and Your Skin

First Person Treated in Phase 1 Trial Testing AZP-3601 for Hypoparathyroidism

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Treatment Options for Hypoparathyroidism

Study: Lower Quality of Life, Worse Symptoms in Thyroid Cancer Survivors With Hypoparathyroidism

PTH Replacement Therapy for Hypoparathyroidism

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Hypoparathyroidism in Children

TransCon PTH Reduces Need for Other Therapy, Improves Quality of Life, New Data Show

Raising Awareness About Hypoparathyroidism

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

How to Help Support a Family Member With Hypoparathyroidism

AZP-3601 Earns FDA’s Orphan Drug Designation

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Hypoparathyroidism and Exercise

First Latin America Hypoparathyroidism Study Finds Poor Disease Control

Looking After Your Heart When You Have Hypoparathyroidism

Long-term Forteo Found to Safely Treat Hypoparathyroidism in Boy With Jacobsen Syndrome

How Hypoparathyroidism May Affect Your Heart

Certain Cancer Therapies May Rarely Lead to Hypoparathyroidism, Case Study Reports

Hypoparathyroidism and Seizures

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

Subscribe to our mailing list

Uncontrolled Hypoparathyroidism Leads to Substantial Burden of Illness, Surveyed Physicians Say

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

Specific Thyroid Surgery Procedures Dictate Later Risk of Hypoparathyroidism

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Weight Loss Surgery May Present Problems for Hypoparathyroidism Patients, Report Asserts

Staying Motivated With a Chronic Disease Like Hypoparathyroidism

Hypoparathyroidism Risk Increases After Thyroid, Lymph Node Surgery, Study Reports

FAQs about Hypoparathyroidism

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

FAQs About Natpara for Hypoparathyroidism

TransCon PTH Granted Orphan Drug Designation in Europe

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

Hypoparathyroidism and Your Skin

First Person Treated in Phase 1 Trial Testing AZP-3601 for Hypoparathyroidism

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Treatment Options for Hypoparathyroidism

Study: Lower Quality of Life, Worse Symptoms in Thyroid Cancer Survivors With Hypoparathyroidism

PTH Replacement Therapy for Hypoparathyroidism

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Hypoparathyroidism in Children

TransCon PTH Reduces Need for Other Therapy, Improves Quality of Life, New Data Show

Raising Awareness About Hypoparathyroidism

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find