Updates

November 26, 2020November 26, 2020
Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with rare diseases, negatively affecting their ... Read more
November 25, 2020November 25, 2020
Specific Thyroid Surgery Procedures Dictate Later Risk of Hypoparathyroidism

The specific surgical procedures used when patients undergo thyroid surgery — known as thyroidectomy — dictate the risks they have of developing hypoparathyroidism and ... Read more
November 19, 2020November 19, 2020
Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to start a nonprofit and ... Read more
November 18, 2020November 18, 2020
Weight Loss Surgery May Present Problems for Hypoparathyroidism Patients, Report Asserts

People with hypoparathyroidism who wish to undergo weight-loss surgery should consider possible difficulties in maintaining calcium levels within a normal range before undergoing the ... Read more
November 13, 2020November 13, 2020
Staying Motivated With a Chronic Disease Like Hypoparathyroidism

If you have a rare chronic disease such as hypoparathyroidism you sometimes may feel isolated and misunderstood. Symptoms such as muscle aches or cramps, ... Read more

Subscribe to our mailing list

Get regular updates delivered to your email box.

Thanks! Please check your email for a confirmation email.

May 30, 2018May 30, 2018

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

News

Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more

Updates

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

Specific Thyroid Surgery Procedures Dictate Later Risk of Hypoparathyroidism

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Weight Loss Surgery May Present Problems for Hypoparathyroidism Patients, Report Asserts

Staying Motivated With a Chronic Disease Like Hypoparathyroidism

Hypoparathyroidism Risk Increases After Thyroid, Lymph Node Surgery, Study Reports

FAQs about Hypoparathyroidism

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

FAQs About Natpara for Hypoparathyroidism

TransCon PTH Granted Orphan Drug Designation in Europe

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

Subscribe to our mailing list

Hypoparathyroidism and Your Skin

First Person Treated in Phase 1 Trial Testing AZP-3601 for Hypoparathyroidism

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Treatment Options for Hypoparathyroidism

Study: Lower Quality of Life, Worse Symptoms in Thyroid Cancer Survivors With Hypoparathyroidism

PTH Replacement Therapy for Hypoparathyroidism

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Hypoparathyroidism in Children

TransCon PTH Reduces Need for Other Therapy, Improves Quality of Life, New Data Show

Raising Awareness About Hypoparathyroidism

Calcium Deposits More Common in Post-surgical Permanent Hypoparathyroidism, Study Reports

Clinical Trials for Hypoparathyroidism

Decrease in PTH Levels Right After Thyroidectomy Predicts Calcium Deficiency

What Do Different Blood Test Results Mean in Hypoparathyroidism?

TransCon PTH Safe, Effective, May Reduce Need for Other Therapies, Trial Data Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

Stem Cells Production Method Could Lead to New Therapies, Study Suggests

International Osteoporosis Foundation Recognizes Research in Hypoparathyroidism

Genetic Testing for Hypoparathyroidism

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Intraoperative Parathyroid Imaging in Hypoparathyroidism

Permanent Hypoparathyroidism Rare in Children After Total Thyroidectomy, Study Finds

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find