Updates

May 29, 2020May 29, 2020
Support Groups for People Affected by Hypoparathyroidism

Most people may not understand the challenges of living with hypoparathyroidism, and constantly trying to explain them can be tiring. Support groups that bring ... Read more
May 29, 2020May 29, 2020
COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

While the ongoing COVID-19 pandemic won’t have much of an impact on cash available for new biotech startups, it has begun to cause delays ... Read more
May 27, 2020May 27, 2020
Hypoparathyroidism with Pain Mistaken for Type of Arthritis, Case Report Finds

A 52-year-old woman with spine and hip pain related to hypoparathyroidism was wrongly diagnosed with spondyloarthritis (SpA) — a type of arthritis that affects ... Read more
May 25, 2020May 25, 2020
Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 ... Read more
May 22, 2020May 22, 2020
Video Games Connect Chronically Ill Children Isolated at Home, Hospital

Dara Riva always had a rule that her 10-year-old son could play video games only once a week. But then the COVID-19 pandemic struck, ... Read more

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May 30, 2018May 30, 2018

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

News

Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more

Updates

Support Groups for People Affected by Hypoparathyroidism

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Hypoparathyroidism with Pain Mistaken for Type of Arthritis, Case Report Finds

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Differences Between Primary and Secondary Hypoparathyroidism

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Mood Disorders and Hypoparathyroidism

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Takeda Offers Assurances on Natpara Supplies During COVID-19 Pandemic

Calcific Tendonitis May Be Complication of Hypoparathyroidism

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NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Hypoparathyroidism Increases Blood Pressure and Blood Vessel Stiffness, Study Shows

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

TransCon PTH Holds Promise in Treating Hypoparathyroidism, Phase 2 Trial Shows

Hypoparathyroidism and Nutrition

What Are the Different Types of Hypoparathyroidism?

Supplement Need After Thyroid Cancer Surgery Linked to Poorer Life Quality

Hypoparathyroidism as an Autoimmune Disease

Undetectable PTH in Blood May Be Risk Factor for Permanent Hypoparathyroidism Following Neck Surgery

NORD’s Advice on COVID-19: You’re Stronger Than You Think

FAQs About Congenital Hypoparathyroidism

Long‐term Natpara Treatment Improves Bone Remodeling, Study Shows

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

What Are the Factors That Can Cause Hypoparathyroidism?

Novel TBX1 Gene Mutation Caused Family’s Hypoparathyroidism, Deafness, Case Study Says

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Milder, Earlier Symptoms of Hypoparathyroidism Found in Patients with DiGeorge Syndrome

Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

Hypoparathyroidism Risk Can Be Lowered by Careful Surgical Gland Dissection, Study Says

Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

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Support Groups for People Affected by Hypoparathyroidism

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Hypoparathyroidism with Pain Mistaken for Type of Arthritis, Case Report Finds

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Video Games Connect Chronically Ill Children Isolated at Home, Hospital

Differences Between Primary and Secondary Hypoparathyroidism

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Mood Disorders and Hypoparathyroidism

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Takeda Offers Assurances on Natpara Supplies During COVID-19 Pandemic

Calcific Tendonitis May Be Complication of Hypoparathyroidism

Subscribe to our mailing list

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Hypoparathyroidism Increases Blood Pressure and Blood Vessel Stiffness, Study Shows

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

TransCon PTH Holds Promise in Treating Hypoparathyroidism, Phase 2 Trial Shows

Hypoparathyroidism and Nutrition

What Are the Different Types of Hypoparathyroidism?

Supplement Need After Thyroid Cancer Surgery Linked to Poorer Life Quality

Hypoparathyroidism as an Autoimmune Disease

Undetectable PTH in Blood May Be Risk Factor for Permanent Hypoparathyroidism Following Neck Surgery

NORD’s Advice on COVID-19: You’re Stronger Than You Think

FAQs About Congenital Hypoparathyroidism

Long‐term Natpara Treatment Improves Bone Remodeling, Study Shows

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

What Are the Factors That Can Cause Hypoparathyroidism?

Novel TBX1 Gene Mutation Caused Family’s Hypoparathyroidism, Deafness, Case Study Says

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Milder, Earlier Symptoms of Hypoparathyroidism Found in Patients with DiGeorge Syndrome

Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

Hypoparathyroidism Risk Can Be Lowered by Careful Surgical Gland Dissection, Study Says

Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

Pin It on Pinterest