FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar
The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 people and had a budget of $5.7 billion in 2019. ... Read more
Updates
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With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus
The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan in Amsterdam’s suburban Zuidas business district, finally opened for business ... Read more -
New Patient-derived Questionnaire May Better Assess Quality of Life for Those With Hypoparathyroidism, Study Reports
A new questionnaire devised from complaints of patients with hypoparathyroidism may better assess quality of life and the characteristic symptoms of the disorder, according ... Read more -
High Rate of Calcium-alkali Syndrome Linked to Post-surgery Hypoparathyroidism, Study Suggests
People with hypoparathyroidism after surgical removal of the thyroid may develop calcium-alkali syndrome (CAS) — particularly if they are given high doses of vitamin ... Read more -
People With Type 2 Diabetes Should Get Calcium Levels Tested for Hypoparathyroidism, Case Report Suggests
People with type 2 diabetes mellitus and muscle pain should have the calcium levels in their blood measured to check for hypoparathyroidism, a case ... Read more
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Calcium Supplements Every Other Day May Help Manage Chronic Hypoparathyroidism, Study Suggests
People with uncontrolled chronic hypoparathyroidism may more effectively manage their condition by taking oral ... -
Hypoparathyroidism With Brain Calcifications May Cause Movement Problems, Case Report Shows
Hypoparathyroidism may be the underlying cause of movement disorders, such as chorea, that are ... -
Low PTH Levels May Lead to Greater Risk of Fractures in Hypoparathyroidism, Study Suggests
Lower levels of parathyroid hormone (PTH) in people with hypoparathyroidism may lead to decreased ... -
Rare Case of Calcium Supplements Risking Kidney Injury in Women with Hypoparathyroidism Reported
A 61-year-old woman’s case calls attention to the potential development of calcium-alkali syndrome (CAS) ... -
HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases
Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or ... -
Clinicians Should Consider Hypoparathyroidism When Symptoms Suggest Brain Calcification, Case Study Says
Clinicians should consider the possibility of hypoparathyroidism in patients with chronic low levels of ...
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Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find
News
Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more