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    • Brave Butterfly: A Hypoparathyroidism Journey — Bari Vapnek
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Featured News

After a tough year, I’m practicing gratitude while leaving room for anger

For the past few weeks, we’ve been exploring my anger in therapy. The anger is because I can’t find an accessible and reasonable way to write, and it’s directed toward my body for holding me hostage. But behind that volatile emotion is fear. I know that sometimes bodies break and…

A person is seen taking a sip of a drink while their kidneys are highlighted and enlarged to the sides. Discussion
News

Hormone treatment tied to long-term kidney function improvements

Treatment with Yorvipath (palopegteriparatide) was associated with early improvements in kidney function that were sustained for up to five years in adults with hypoparathyroidism, according to new data from two clinical trials. The pooled analysis of the Phase 2 PaTH Forward trial (NCT04009291) and the Phase…

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The unpredictability of living with hypoparathyroidism is like roulette

“The wheel is turning and you can’t slow down,/ You can’t let go and you can’t hold on,/ You can’t go back and you can’t stand still.” — “The Wheel” by the Grateful Dead  Sometimes I feel like living with hypoparathyroidism is like playing roulette, because I never know…

Discussion

Guest Voice: After years of struggling, clinical studies gave me purpose

I recently participated in a clinical study for chronic pain and depression. For several weeks, I answered surveys about my mental health and my willingness to stay alive. The irony of living with post-surgical hypoparathyroidism is that every day I look for strategies to feel better and to stay…

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Featured ColumnsIf the show must go on, I must go on to the show — flare-up or no flare-up

A night out to the theater was almost waylaid by an unexpected occipital neuralgia flare, but columnist Heather Novak was determined to go.

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Perspectives

  1. Banner image for Discussion

    After a tough year, I’m practicing gratitude while leaving room for anger

  2. Banner for Discussion

    The unpredictability of living with hypoparathyroidism is like roulette

  3. Discussion

    Guest Voice: After years of struggling, clinical studies gave me purpose

  4. Banner for Discussion

    I’ve accomplished so much since my hypoparathyroidism diagnosis

  5. Discussion

    Guest Voice: Looking for the person I’m becoming with hypoparathyroidism

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    I’m finally learning that pushing past my limits has lasting effects

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