Rare Disease Film Festival Highlights Patient and Researcher Unity
Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 ... Read more
Updates
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High BMI Predicts Poor Response to Vitamin D in Patients With Chronic Hypoparathyroidism, Study Reports
High body mass index (BMI) may predict poor response to standard vitamin D treatment in people with chronic hypoparathyroidism, a pilot study has found. If confirmed ... Read more -
PTH Levels 4 Hours After Thyroidectomy Is Best Predictor of Hypoparathyroidism, Study Suggests
Four hours after surgery is the best time to measure intact parathyroid hormone (iPTH) levels to predict the risk of hypoparathyroidism following thyroidectomy, a ... Read more -
Phase 2 Study of Treatment for Hypoparathyroidism, TransCon PTH, Starts to Enroll Adults
A Phase 2 trial evaluating the efficacy and safety of TransCon PTH — designed to restore parathyroid hormone (PTH) levels within 24 hours — in people ... Read more -
New 17-Item Survey Specific to Hypoparathyroidism May Help in Treating Patients, Study Says
An easy-to-use scale accessing the severity of 17 symptoms linked to hypoparathyroidism from a patient’s perspective has been developed by researchers. If confirmed in future ... Read more
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Fatigue in Post-surgery Hypoparathyroidism Linked to Problems with Control of Heart Rate, Study Finds
Greater fatigue in postoperative patients with chronic hypoparathyroidism (hypoPT) is associated with cardiovascular autonomic ... -
Doses of Oral hPTH(1-34) May Safely be Adjusted to Suit Needs of Patients with Hypoparathyroidism, Phase 2 Study Shows
The pharmacological properties of hPTH(1-34) allow the oral medication to be administered at different ... -
Combination Surgical Approach May Limit Hypoparathyroidism After Thyroid Surgery, Study Says
Researchers may have found a way to decrease the risks of temporary or permanent ... -
NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC
Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, ... -
Researchers ID New Mutations Associated with Early-onset Hypoparathyroidism
A genetic screening of a large Chinese population has revealed 14 new mutations linked ... -
Liver Transplant Could Rescue Hypoparathyroidism Caused by Wilson Disease, Case Report Suggests
A case report in China suggests that a liver transplant may rescue hypoparathyroidism caused by ...
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Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find
News
Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more