Updates

April 17, 2019April 17, 2019
Hypoparathyroidism Interferes with Patients’ Quality of Life, Study Finds

Despite treatment, all patients with hypoparathyroidism experience physical and psychological symptoms that negatively impact their quality of life, a study finds. The findings were presented ... Read more
April 10, 2019April 10, 2019
Risk of Complications Increases with Patient’s Age for Thyroidectomy, But Not for Hypoparathyroidism

Contrary to other thyroid-related complications, the incidence of hypoparathyroidism in patients who undergo a thyroidectomy — a common complication associated with this type of surgery — tends to ... Read more
April 3, 2019April 3, 2019
Chronic Hypoparathyroidism Linked to Long-term Renal, Cardiovascular Problems, Studies Show

Chronic hypoparathyroidism is linked to long-term renal and cardiovascular complications, and can have severe implications on patients’ health-related quality of life, according to data from ... Read more
March 27, 2019March 27, 2019
Report Describes How Skin Cancer Treatment Resulted in Hypoparathyroidism

Treatment with an immunotherapy regimen against skin cancer resulted in a rare case of immune-mediated hypoparathyroidism, according to a case report. This rare case was ... Read more
March 20, 2019March 20, 2019
Calcium Supplements Not Always Needed to Treat Hypoparathyroidism, Study Suggests

A new study suggests that calcium supplements might not be necessary for all patients with hypoparathyroidism. This treatment approach could be especially helpful for patients ... Read more

News

Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn
March 15, 2019March 14, 2019
Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will ...
News

Ascendis Pharma Seeks FDA Approval for TransCon PTH Phase 2 Trial
March 13, 2019March 13, 2019
Ascendis Pharma is planning to initiate clinical studies to evaluate the potential of its ...
News

Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist
March 13, 2019March 11, 2019
With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn ...
News

NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research
March 6, 2019March 5, 2019
Rare diseases affect about 30 million Americans — roughly the same number as those ...
News

WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April
February 27, 2019February 25, 2019
The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government ...
News

Vienna to Host RARE2019 Meeting on Rare Diseases
February 22, 2019February 20, 2019
About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city ...

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Trial Assesses Benefits of New Parathyroid Auto-Transplantation Site for Hypoparathyroidism
February 13, 2019February 13, 2019
A team of Chinese researchers is conducting a clinical trial to test a new parathyroid ...
Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
February 11, 2019
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities ...
Hypoparathyroidism Symptom Diaries Are Reliable, Valid, Study Says
February 6, 2019February 6, 2019
Postoperative Parathyroid Hormone Levels Predict Hypoparathyroidism Risk
January 30, 2019January 30, 2019
Post-surgical Hypoparathyroidism Protects Against Effects of Thyroid Suppressors on Bone, Study Finds
January 2, 2019January 8, 2019
Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
December 21, 2018December 20, 2018

Many Hypoparathyroidism Patients Would Consider Parathyroid Transplant, Survey Shows
December 19, 2018December 19, 2018
Patients with hypoparathyroidism who experience severe symptoms and a low quality of life, despite receiving ...
Alizé Pharma 3 Aims to Become Leader in Treatment of Rare Endocrine and Metabolic Disease
December 12, 2018December 12, 2018
Pregnant Women Should Monitor Serum Calcium Levels, Researchers Say
December 5, 2018December 5, 2018
Entera Bio’s Parathyroid Hormone Therapy Shows Potential in Early Phase 2 Results
November 28, 2018April 2, 2019

Chronic Hypoparathyroidism Linked to Higher Risk of Serious Illnesses, Study Finds
November 8, 2018November 8, 2018
People with chronic hypoparathyroidism are at higher risk of developing other illnesses — including heart ...
#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
October 31, 2018October 29, 2018
Risk of Complications After Thyroidectomy Not Increased in Older Patients, Study Reports
October 24, 2018October 24, 2018

News

CHOP Physician Wins ASBMR Award for Bone and Mineral Metabolism Research
October 17, 2018October 17, 2018
A renowned expert on metabolic bone disorders, including hypoparathyroidism, Michael A. Levine’s groundbreaking professional ...
News

Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
October 10, 2018
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced ...
News

Temporary Hypoparathyroidism Common After Surgery in Thyroiditis Patients, Study Finds
October 3, 2018October 3, 2018
Post-surgical hypoparathyroidism is a common temporary complication in patients who undergo thyroid removal surgery, ...
News

Injection of Carbon Nanoparticles During Thyroid Cancer Surgery Helps Prevent Hypoparathyroidism
September 26, 2018September 26, 2018
The injection of carbon nanoparticles during surgery to remove thyroid cancer and central lymph ...
News

#NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington
September 21, 2018September 21, 2018
More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to ...
News

Measures Taken 24 Hours After Thyroidectomy Can Predict Permanent Hypoparathyroidism, Study Finds
September 19, 2018September 19, 2018
Measuring the levels of parathyroid hormone and blood calcium levels 24 hours after a ...
News

Gene Mutation Linked to Hypoparathyroidism, Certain Features in Sanjad-Sakati Syndrome Patients, Study Reports
September 12, 2018September 12, 2018
Iranian patients with Sanjad-Sakati syndrome (SSS) show specific gene mutations associated with hypoparathyroidism, severe ...
News

Primary Hypoparathyroidism Discovered as a Result of Dengue Fever Infection
September 5, 2018September 5, 2018
Primary hypoparathyroidism may go undiagnosed until a secondary condition, such as dengue, worsens levels ...
News

Plasma Gel Could Be Used to Deliver PTH-producing Cells to Treat Hypoparathyroidism, Study Shows
August 29, 2018August 29, 2018
A plasma gel scaffold, easily injected and capable of delivering cells that produce and ...

May 30, 2018May 30, 2018

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

News

Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more

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