Updates

September 23, 2020September 23, 2020
Calcium Deposits More Common in Post-surgical Permanent Hypoparathyroidism, Study Reports

Calcium deposits in the carotid arteries and brain are more common in people with permanent hypoparathyroidism who underwent thyroid removal surgery than in the ... Read more
September 21, 2020September 21, 2020
Clinical Trials for Hypoparathyroidism

There currently is no cure for hypoparathyroidism, and moreover, few therapy options are available — particularly for patients for whom the standard treatment of calcium ... Read more
September 16, 2020September 17, 2020
Decrease in PTH Levels Right After Thyroidectomy Predicts Calcium Deficiency

Having a greater than 65% drop in parathyroid hormone (PTH) levels on the first day after a total thyroid removal increases the likelihood of ... Read more
September 11, 2020September 11, 2020
What Do Different Blood Test Results Mean in Hypoparathyroidism?

Hypoparathyroidism can have a number of different causes. Therefore, a battery of tests is usually necessary to diagnose it. What each blood test is ... Read more
September 9, 2020September 9, 2020
TransCon PTH Safe, Effective, May Reduce Need for Other Therapies, Trial Data Shows

TransCon PTH, an investigational therapy being developed by Ascendis Pharma, safely normalized calcium and phosphate levels, and reduced the need for other treatments in ... Read more

Subscribe to our mailing list

Get regular updates delivered to your email box.

Thanks! Please check your email for a confirmation email.

May 30, 2018May 30, 2018

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

News

Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more

Updates

Calcium Deposits More Common in Post-surgical Permanent Hypoparathyroidism, Study Reports

Clinical Trials for Hypoparathyroidism

Decrease in PTH Levels Right After Thyroidectomy Predicts Calcium Deficiency

What Do Different Blood Test Results Mean in Hypoparathyroidism?

TransCon PTH Safe, Effective, May Reduce Need for Other Therapies, Trial Data Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

Stem Cells Production Method Could Lead to New Therapies, Study Suggests

International Osteoporosis Foundation Recognizes Research in Hypoparathyroidism

Genetic Testing for Hypoparathyroidism

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Intraoperative Parathyroid Imaging in Hypoparathyroidism

Subscribe to our mailing list

Permanent Hypoparathyroidism Rare in Children After Total Thyroidectomy, Study Finds

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Pseudopseudohypoparathyroidism (Pseudo-PHP)

New Streaming Channel Showcases Rare Disease Films

Study: Natpara Prevents Kidney Insufficiency Long-term in Hypoparathyroidism

FAQs About PTH Replacement Therapy for Hypoparathyroidism

Hypoparathyroidism Patients Show Extensive Changes in Bone Microstructure

Emergency ID Card for Hypoparathyroidism

Transient Problems With Calcium Likely Post-surgery if Vitamin D Levels Low, Study Finds

Warning Signs of Depression in People With Hypoparathyroidism

Mental Health Affected in Patients With Hypoparathyroidism After Surgery, Study Suggests

Spoon Theory for Hypoparathyroidism

ProLynx Awarded NIH Grant to Develop Long-acting PTH Therapy

Continuous PTH Infusion May Benefit Non-Responding Patients, Case Report Finds

What Is Pseudohypoparathyroidism (PHP)?

Chronic Hypoparathyroidism Due to Thyroid Surgery May Be Fairly Common

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Tips for Managing Fatigue When You Have Hypoparathyroidism

Alizé Pharma 3 Rebrands as Amolyt Pharma, Plans AZP-3601 Trial

Hypoparathyroidism and Pregnancy

Coalition Will Address Racial Disparities in Rare Disease Communities

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

Pin It on Pinterest

Calcium Deposits More Common in Post-surgical Permanent Hypoparathyroidism, Study Reports

Clinical Trials for Hypoparathyroidism

Decrease in PTH Levels Right After Thyroidectomy Predicts Calcium Deficiency

What Do Different Blood Test Results Mean in Hypoparathyroidism?

TransCon PTH Safe, Effective, May Reduce Need for Other Therapies, Trial Data Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

Stem Cells Production Method Could Lead to New Therapies, Study Suggests

International Osteoporosis Foundation Recognizes Research in Hypoparathyroidism

Genetic Testing for Hypoparathyroidism

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Intraoperative Parathyroid Imaging in Hypoparathyroidism

Subscribe to our mailing list

Permanent Hypoparathyroidism Rare in Children After Total Thyroidectomy, Study Finds

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Pseudopseudohypoparathyroidism (Pseudo-PHP)

New Streaming Channel Showcases Rare Disease Films

Study: Natpara Prevents Kidney Insufficiency Long-term in Hypoparathyroidism

FAQs About PTH Replacement Therapy for Hypoparathyroidism

Hypoparathyroidism Patients Show Extensive Changes in Bone Microstructure

Emergency ID Card for Hypoparathyroidism

Transient Problems With Calcium Likely Post-surgery if Vitamin D Levels Low, Study Finds

Warning Signs of Depression in People With Hypoparathyroidism

Mental Health Affected in Patients With Hypoparathyroidism After Surgery, Study Suggests

Spoon Theory for Hypoparathyroidism

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

ProLynx Awarded NIH Grant to Develop Long-acting PTH Therapy

Continuous PTH Infusion May Benefit Non-Responding Patients, Case Report Finds

What Is Pseudohypoparathyroidism (PHP)?

Chronic Hypoparathyroidism Due to Thyroid Surgery May Be Fairly Common

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Tips for Managing Fatigue When You Have Hypoparathyroidism

Alizé Pharma 3 Rebrands as Amolyt Pharma, Plans AZP-3601 Trial

Hypoparathyroidism and Pregnancy

Coalition Will Address Racial Disparities in Rare Disease Communities

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

Pin It on Pinterest