Updates

March 20, 2019March 20, 2019
Calcium Supplements Not Always Needed to Treat Hypoparathyroidism, Study Suggests

A new study suggests that calcium supplements might not be necessary for all patients with hypoparathyroidism. This treatment approach could be especially helpful for patients ... Read more
March 15, 2019March 14, 2019
Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will suffer deeply if Britain leaves the European Union (EU), as ... Read more
March 13, 2019March 13, 2019
Ascendis Pharma Seeks FDA Approval for TransCon PTH Phase 2 Trial

Ascendis Pharma is planning to initiate clinical studies to evaluate the potential of its investigational therapy TransCon PTH in adult patients with hypoparathyroidism. The ... Read more
March 13, 2019March 11, 2019
Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn screening, to vaccinations, gene therapies and euthanasia. But rare diseases ... Read more
March 6, 2019March 5, 2019
NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

Rare diseases affect about 30 million Americans — roughly the same number as those with type 2 diabetes. Yet only 5 percent of the ... Read more

News

WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April
February 27, 2019February 25, 2019
The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government ...
News

Vienna to Host RARE2019 Meeting on Rare Diseases
February 22, 2019February 20, 2019
About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city ...
News

Trial Assesses Benefits of New Parathyroid Auto-Transplantation Site for Hypoparathyroidism
February 13, 2019February 13, 2019
A team of Chinese researchers is conducting a clinical trial to test a new parathyroid ...
News

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
February 11, 2019
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities ...
News

Hypoparathyroidism Symptom Diaries Are Reliable, Valid, Study Says
February 6, 2019February 6, 2019
Analysis of hypoparathyroidism symptom diaries is an appropriate measure of disease symptoms and how they ...
News

Postoperative Parathyroid Hormone Levels Predict Hypoparathyroidism Risk
January 30, 2019January 30, 2019
A meticulous surgical technique based on parathyroid autotransplantation, and not vitamin D supplementation, is ...

Subscribe to our mailing list

Get regular updates delivered to your email box.

Thanks! Please check your email for a confirmation email.

Post-surgical Hypoparathyroidism Protects Against Effects of Thyroid Suppressors on Bone, Study Finds
January 2, 2019January 8, 2019
Postmenopausal women with post-surgical hypoparathyroidism treated with thyroid suppressors are less likely to experience bone loss ...
Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
December 21, 2018December 20, 2018
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures ...
Many Hypoparathyroidism Patients Would Consider Parathyroid Transplant, Survey Shows
December 19, 2018December 19, 2018
Alizé Pharma 3 Aims to Become Leader in Treatment of Rare Endocrine and Metabolic Disease
December 12, 2018December 12, 2018
Pregnant Women Should Monitor Serum Calcium Levels, Researchers Say
December 5, 2018December 5, 2018
Entera Bio’s Parathyroid Hormone Therapy Shows Potential in Early Phase 2 Results
November 28, 2018November 28, 2018

Chronic Hypoparathyroidism Linked to Higher Risk of Serious Illnesses, Study Finds
November 8, 2018November 8, 2018
People with chronic hypoparathyroidism are at higher risk of developing other illnesses — including heart ...
#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
October 31, 2018October 29, 2018
Risk of Complications After Thyroidectomy Not Increased in Older Patients, Study Reports
October 24, 2018October 24, 2018
CHOP Physician Wins ASBMR Award for Bone and Mineral Metabolism Research
October 17, 2018October 17, 2018

Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
October 10, 2018
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced ...
Temporary Hypoparathyroidism Common After Surgery in Thyroiditis Patients, Study Finds
October 3, 2018October 3, 2018
Injection of Carbon Nanoparticles During Thyroid Cancer Surgery Helps Prevent Hypoparathyroidism
September 26, 2018September 26, 2018

News

#NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington
September 21, 2018September 21, 2018
More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to ...
News

Measures Taken 24 Hours After Thyroidectomy Can Predict Permanent Hypoparathyroidism, Study Finds
September 19, 2018September 19, 2018
Measuring the levels of parathyroid hormone and blood calcium levels 24 hours after a ...
News

Gene Mutation Linked to Hypoparathyroidism, Certain Features in Sanjad-Sakati Syndrome Patients, Study Reports
September 12, 2018September 12, 2018
Iranian patients with Sanjad-Sakati syndrome (SSS) show specific gene mutations associated with hypoparathyroidism, severe ...
News

Primary Hypoparathyroidism Discovered as a Result of Dengue Fever Infection
September 5, 2018September 5, 2018
Primary hypoparathyroidism may go undiagnosed until a secondary condition, such as dengue, worsens levels ...
News

Plasma Gel Could Be Used to Deliver PTH-producing Cells to Treat Hypoparathyroidism, Study Shows
August 29, 2018August 29, 2018
A plasma gel scaffold, easily injected and capable of delivering cells that produce and ...
News

Active Surveillance Best in Thyroid Cancer to Avoid Hypoparathyroidism, Study Finds
August 22, 2018August 22, 2018
Patients with small papillary thyroid cancers should not undergo a total thyroidectomy, but should ...
News

Hypoparathyroidism Patients on Hormone Therapy Should Be Monitored for Renal Calcium Deposits, Study Finds
August 8, 2018August 8, 2018
With the increasing use of parathyroid hormone therapy in patients with hypoparathyroidism, physicians need ...
News

Hypoparathyroidism Should Be Considered When Patient Has Seizures, Case Study Says
August 1, 2018August 1, 2018
Diagnoses other than epilepsy, including hypoparathyroidism, should be considered when a patient arrives at the ...
News

Long‐term Use of Specific Hormone in Hypoparathyroidism Benefits Bone Remodeling, Study Finds
July 11, 2018July 11, 2018
Long-term treatment with the human recombinant parathyroid hormone (rhPTH) in patients with hypoparathyrodism causes significant and ...

May 30, 2018May 30, 2018

Asymptomatic Hypoparathyroidism in Thalassemia Patients Is Not Uncommon, Researchers Find

News

Screening for asymptomatic hypoparathyroidism should be considered in transfusion-dependent thalassemia patients to allow for early disease detection and intervention, researchers suggest. Their study, “Under-recognized Hypoparathyroidism in Thalassemia,” was published in the Journal of Clinical Research in Pediatric Endocrinology. The occurrence ... Read more

Subscribe to our mailing list

Pin It on Pinterest