News

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the hundreds of millions of individuals they are thought to affect. Patients, caregivers, and advocates worldwide will sport denim ribbons…

New Patient-derived Questionnaire May Better Assess Quality of Life for Those With Hypoparathyroidism, Study Reports

A new questionnaire devised from complaints of patients with hypoparathyroidism may better assess quality of life and the characteristic symptoms of the disorder, according to a study. The study, “The HPQ—Development and First Administration of a Questionnaire for Hypoparathyroid Patients,” was published in the journal JBMR Plus. Among…