Columns

How I’m safely reconnecting with my body through tattoos

Having a rare disease means I have a complicated relationship with my body. I cycle through anger — wishing away my medical problems or my staggering medical bills — and the empathy that comes with knowing that teenage me navigated my medical journey the best I could. After turning 40…

Life before and after a major calcium crash, when everything changed

Note: This column describes the author’s own experiences with Natpara (parathyroid hormone). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. “A journey of a thousand miles begins with a single step.” – Lao-tzu In 2016, after I experienced a…

Saying goodbye to a long-term care provider is never easy

I’ve been going to physical therapy every week since 2022 to help with my hypoparathyroidism-related muscle spasms. At my appointment this week, my longtime therapist announced that he’s leaving to take another job where I can’t follow. I’m so thrilled that he’s found a position that’s a better fit,…

What does accessibility mean for someone with hypopara?

Hypoparathyroidism makes me rethink accessibility. Sometimes accessibility means having a livestream option for an event when travel is impossible. Sometimes it means having a temperature-controlled climate, because sweating can lower my calcium level. And sometimes it means having a seat at a standing-room-only show. With my hypopara, standing for…

Assessing my dreams after another year around the sun

“May the dreams of your past be the reality of your future.” — Jimi Hendrix I celebrated my birthday last week with minimal fanfare yet much gratitude to have turned 52. I missed celebrations this year because my hypoparathyroidism, or hypopara, doesn’t respect plans and shows up when I…

The origin story of a brave hypopara butterfly

I am Bari Gordon Vapnek, and I’m thrilled to share my brave journey with hypoparathyroidism here in this new column. Living in Florida, I’m a 51-year-old mother of two: a 25-year-old daughter, Drew, who’s a chiropractor in Atlanta, and a 23-year-old son, Harrison, who’s a sports director for an…

My new mobility aid gives me a taste of freedom

After a long stretch of cold and gray, the sun popped out this week, bringing with it warmer temperatures. I was thrilled for a reprieve from the body-aching winter, ready to get outside. Thankfully, my motorized rollator/transport chair from Rollz had just arrived, and it was the perfect chance to…