Precious, Not Fragile - a Column by Heather Novak

I’ve been publishing books and blogging about my disease for over a decade, yet nothing has taught me more about being vulnerable than writing this column. I’m of the age to remember LiveJournal and have seen my share of nasty Reddit comment sections. Being public about anything personal — especially…

With a chronic illness like hypoparathyroidism, it’s easy to lose myself on bad days. When intense pain and anxiety steal my sleep, it’ll launch a chain reaction. If I don’t sleep well, I’ll become more anxious, which causes me to hyperventilate. That, in turn, lowers my blood calcium…

Happy Rare Disease Day! I’m curled up under my blankets, willing my body to recuperate after traveling for a family emergency, and reflecting on how much heavier this day feels to me this year. Since its creation in 2008, Rare Disease Day, on the last day of February, has…

When I was in seventh grade, I held up a poster board with big, bold letters and proclaimed that my favorite cassette tape was “Jagged Little Pill” by “Atlantis Morrisonite.” I learned two important lessons that day. First, never trust the built-in spell-check. Second, the meaning of a word can…

It’s Valentine’s Day, and as a romance writer, I expected to write a very different column for this week. As I type this, Mr. Heather is helping me prepare for a trip to tell a family member I love them for the last time. This is love in so many…

My name is Heather Novak, and I’ve been a surgical hypoparathyroidism (hypopara for short) warrior since 2003 as well as an award-winning LGBTQ+ romance writer. The tale of my journey starts with a skeleton — my actual skeleton, not the fake ones in my living room, pictured below and…