Columns

Feeling hopeful about the future of hypoparathyroidism treatment

“Knowledge is the light of the mind.” — University of Delaware’s motto May 27, 1995, was a significant day in my life. It was the day I graduated from the University of Delaware, a momentous occasion held at the school’s football stadium in Newark. The hot and sunny Memorial Day…

What I learned from a medication injection mistake

I was having an incredible week! I’d pushed my body to the limit to meet my book deadline and had finished on time. I took part in a rare career opportunity and went to sleep on Tuesday night celebrating. Wednesday morning, I had to make a call about the…

An awareness day that’s crucial to improving our lives

‘To be an activist is to speak. To be an advocate is to listen. Society can’t move forward without both.” —  activist Eva Maria Lewis When I was diagnosed with the rare endocrine disorder hypoparathyroidism in 1998, I felt like I was the only person in the world…

Taking medication is complicated with a lactose allergy

I have a mortal enemy. We circle each other often. I’m consistently trying to de-escalate and avoid, while they’re popping up at the most surprising moments, rendering me incapacitated. I spend hundreds of dollars a month trying to protect myself, hoping I continue to be successful in my lifelong fight.

Giving the gift of hope during Mental Health Awareness Month

“Helping one person might not change the world, but it could change the world for one person.” — Anonymous Spring is my favorite season. The flowers are blooming, the temperature is ideal, and it’s an excellent time to appreciate beautiful days like today. I have spring fever! Along with tulips…

Fighting our battles with head held high

“Life is 10% what happens to us and 90% how we react to it.” — Charles R. Swindoll My adult children invited me to Walt Disney World for Labor Day weekend in 2023. They know I always try to make things happen when they have a request. Since they’re also…

The uncertainty of hypopara gives me anxiety about the future

Note: This column describes the author’s own experiences with Natpara (recombinant human parathyroid hormone) and Yorvipath (palopegteriparatide). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. For the first time in three years, I’m about to finish a full-length novel. As I…