“Helping one person might not change the world, but it could change the world for one person.” — Anonymous Spring is my favorite season. The flowers are blooming, the temperature is ideal, and it’s an excellent time to appreciate beautiful days like today. I have spring fever! Along with tulips…
Books have always been a constant in my life. I remember collecting “Goosebumps” by R.L. Stine and “The Vampire Diaries” by L.J. Smith, and I still have a few first editions on my bookshelf. From romance and Westerns to cozy mysteries and fan fiction on Archive of Our Own…
“Life is 10% what happens to us and 90% how we react to it.” — Charles R. Swindoll My adult children invited me to Walt Disney World for Labor Day weekend in 2023. They know I always try to make things happen when they have a request. Since they’re also…
Note: This column describes the author’s own experiences with Natpara (recombinant human parathyroid hormone) and Yorvipath (palopegteriparatide). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. For the first time in three years, I’m about to finish a full-length novel. As I…
“No two paths are the same, just as no two people are the same.” — writer Cait Flanders My motto — “Everything happens the way it should” — expresses an acceptance that sometimes things occur beyond our control. It’s similar to the Alcoholics Anonymous philosophy of accepting things we cannot…
Having a rare disease means I have a complicated relationship with my body. I cycle through anger — wishing away my medical problems or my staggering medical bills — and the empathy that comes with knowing that teenage me navigated my medical journey the best I could. After turning 40…
Note: This column describes the author’s own experiences with Natpara (parathyroid hormone). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. “A journey of a thousand miles begins with a single step.” – Lao-tzu In 2016, after I experienced a…
I’ve been going to physical therapy every week since 2022 to help with my hypoparathyroidism-related muscle spasms. At my appointment this week, my longtime therapist announced that he’s leaving to take another job where I can’t follow. I’m so thrilled that he’s found a position that’s a better fit,…
“Passover is a time of reflection and joy, when we emerge from our cocoon of doubt to fly freely on the wings of faith.” — Unknown Last week, I celebrated Passover, a Jewish holiday rich with traditions passed down through generations. We gather with family, surrounded by love, as we…
Hypoparathyroidism makes me rethink accessibility. Sometimes accessibility means having a livestream option for an event when travel is impossible. Sometimes it means having a temperature-controlled climate, because sweating can lower my calcium level. And sometimes it means having a seat at a standing-room-only show. With my hypopara, standing for…
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