Brave Butterfly: A Hypoparathyroidism Journey - a Column by Bari Vapnek

Going from patient to caregiver is helping me accept my own needs

“Independence is happiness.” — Susan B. Anthony I have learned that if I want something done correctly, I should do it myself. I am independent. I’ve been this way my whole life, and it has helped me manage my hypoparathyroidism. Hypopara casts a shadow over my life, dictating the…

Even when hypopara is challenging, ‘just keep swimming’

“Just keep swimming. Just keep swimming, swimming, swimming. What do we do? We swim, swim.” — Dory from “Finding Nemo”  Hypoparathyroidism consumes me; it’s a constant battle, a full-time job. My life revolves around the condition, whether it’s supporting fellow patients, sharing my experiences with researchers, going to the…

The silent struggle of hiding my hypoparathyroidism

“I’m used to being judged. I know what that feels like.” — NASCAR driver Michael Waltrip Hypoparathyroidism is an invisible illness. I appear healthy, but I struggle to exercise and become dizzy from low blood pressure. I easily forget things and sometimes can’t remember what I was saying…

A year of loss and grief, and a fresh outlook on life

“Grief is the price we pay for love.” — Queen Elizabeth II Today marks a year since my dog, Princess Leia, died. A coton de tulear, Leia was a cute, little, white ball of fluff.  She was by my side from the moment I picked her up, Super…

Flying high as I embrace a positive change in my life with hypopara

“Just when the caterpillar thought the world was over, it became a butterfly.” — Unknown The transformation of an awkward, unattractive caterpillar into a graceful, winged butterfly is a remarkable spectacle and a powerful symbol of change, renewal, and growth. This journey of self-discovery teaches the caterpillar to embrace…