Brave Butterfly: A Hypoparathyroidism Journey
— Bari Vapnek

Column banner for Bari Vapnek, "Brave Butterfly: A Hypoparathyroidism Journey"

Bari Gordon Vapnek was born in New York and relocated to Florida in 1995 after graduating from the University of Delaware with a BS in Business Administration. Hired as a director of new business development, she married in 1997 and, a year later, was diagnosed with the rare disease, hypoparathyroidism. Unaware of the implications of diagnosis, she persevered through challenging days, relying on a daily intake of calcium, her lifeline.

Having to leave her career, she became a mom, managing hypoparathyroidism and feeling isolated. In 2019 she discovered the Hypoparathyroidism Association. She became actively involved and assumed a position as a board member. Bari has written and spoken publicly about her journey. She believes her column can help those who feel isolated in their diagnosis.

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Navigating hypopara with the Year of the Horse as my inspiration

“Courage is being scared to death, but saddling up anyway.” — a popular saying often attributed to John Wayne Red lanterns shimmer above bustling Chinatown streets, their light flickering against a sea of red envelopes and golden paper dragons. The Chinese Lunar New Year began Feb. 17, symbolizing the…

Bari Vapnek

The Olympics inspire me to go for gold, despite hypoparathyroidism

“The courage to soar to great heights is inside all of us.” — Olympic gold medalist Kerri Strug In sports, we discover one of life’s greatest lessons: the courage to overcome adversity and rise stronger each time we fall. Sports have the power to transform lives by teaching resilience and…

Bravely riding the roller coaster of life with hypoparathyroidism

“It’s my life, and it’s now or never/ I ain’t gonna live forever/ I just wanna live while I’m alive.” — Bon Jovi, “It’s My Life” I was 8 years old when I rode my first upside-down roller coaster, the Superdooperlooper, at Hersheypark in Pennsylvania. As the ride…

Reflecting on the qualities of a good friend in life with chronic illness

“Friends don’t owe! They do because they wanna do.” — Rocky Balboa in “Rocky III” Friendships, much like hypoparathyroidism, are not one-size-fits-all. I appreciate my small, close-knit circle of friends. When I was younger, my mom would tell me, “All you need is one good friend.” Back then, I…

Reflections on gratitude and hope for the new year

“It was the best of times, it was the worst of times.” — Charles Dickens in “A Tale of Two Cities” Describing my year as both the best and worst of times may seem contradictory, but it truly reflects my experience. Similar to the theme in Charles Dickens’ classic novel,…

Reflecting on my experience in a clinical trial during the pandemic

Note: This column describes the author’s own experiences with TransCon PTH, now called Yorvipath (palopegteriparatide). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. “Life is not easy for any of us. But what of that? We must have perseverance and…

I feel grateful to be surrounded by love on Thanksgiving

“What if today, we were just grateful for everything?” — Charlie Brown Life with hypoparathyroidism is a journey marked by uncertainty, where we can swiftly shift from elated to exhausted. Yet I navigate it with unwavering resilience and determination, my constant companions. It’s hard to make plans, work,…

With hypopara, the good days are won one yard at a time

“And isn’t it ironic? Don’t you think?” — “Ironic” by Alanis Morissette With hypoparathyroidism, every good day is a triumph over bad days. But that doesn’t mean the good days come easy. I spent a recent day with a friend in New York watching the San Francisco 49ers…

Going from patient to caregiver is helping me accept my own needs

“Independence is happiness.” — Susan B. Anthony I have learned that if I want something done correctly, I should do it myself. I am independent. I’ve been this way my whole life, and it has helped me manage my hypoparathyroidism. Hypopara casts a shadow over my life, dictating the…

Finding my purpose 10,000 days after my hypopara diagnosis

“Scars are souvenirs you never lose/ The past is never far.” — “Name” by the Goo Goo Dolls As I’ve previously written, I take a photo every day as a reminder of a life lived, not one that has passed by. I have boxes of photos from all stages…

Even when hypopara is challenging, ‘just keep swimming’

“Just keep swimming. Just keep swimming, swimming, swimming. What do we do? We swim, swim.” — Dory from “Finding Nemo”  Hypoparathyroidism consumes me; it’s a constant battle, a full-time job. My life revolves around the condition, whether it’s supporting fellow patients, sharing my experiences with researchers, going to the…

A survey teaches me about my children’s fears and resilience

“Long as I know how to love, I know I’ll stay alive/ I’ve got my life to live, and all my love to give/ And I will survive.” — “I Will Survive” by Gloria Gaynor My journey into motherhood began right as I was diagnosed with hypoparathyroidism. Nine months…


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