Mary Chapman, features writer —

Hypoparathyroidism can result in a host of symptoms that, in addition to fatigue and generalized weakness, may include tingling in fingertips and other areas, and muscle pain and cramps. Your feelings, physical and emotional, can be overwhelming and difficult to explain to others. The spoon theory can…

Fatigue is common among people with a chronic disease, and is likely  familiar to those with hypoparathyroidism. Here are some tips to help you manage fatigue and possibly get relief. What is hypoparathyroidism? Hypoparathyroidism is a rare condition in which the parathyroid glands produce too little…

While it’s not a classic symptom of hypoparathyroidism, some patients report brain fog, which can affect their ability to focus, learn, retain information, and maintain employment. What is hypoparathyroidism? Hypoparathyroidism is a rare condition in which the parathyroid glands produce too little parathyroid hormone, or PTH.

Most people may not understand the challenges of living with hypoparathyroidism, and constantly trying to explain them can be tiring. Support groups that bring you into contact with other patients and families may help. What is hypoparathyroidism? Most of us have four …

Hypoparathyroidism is a condition in which the body cannot produce enough parathyroid hormone (PTH) from the parathyroid glands. Depending on what causes the disease, hypoparathyroidism is categorized as primary or secondary. Primary hypoparathyroidism Primary hypoparathyroidism, also known as congenital hypoparathyroidism, is when the disease occurs…

The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the COVID-19 outbreak is affecting people with rare diseases, their families, and caregivers. Survey questions cover a patient’s physical and mental health, supply of treatments, and access to healthcare, among other…

The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community who are affected by the COVID-19 pandemic in the U.S. Called the NORD COVID-19 Critical Relief Program, the effort will provide up to $1,000 annually to those eligible to…

Hypoparathyroidism is a rare condition in which the parathyroid glands produce too little parathyroid hormone or PTH. This causes a decrease in blood calcium levels and an increase in blood phosphorus levels, which can lead to a broad range of symptoms that include tingling sensations in the…

Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will be available free-of-charge from Elsevier. The offer runs through April 30, and aims to supports work by researchers and clinicians into a better understanding of and treatments for rare diseases, as well…

An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the hundreds of millions of individuals they are thought to affect. Patients, caregivers, and advocates worldwide will sport denim ribbons…