Bari Gordon Vapnek was born in New York and relocated to Florida in 1995 after graduating from the University of Delaware with a BS in Business Administration. Hired as a director of new business development, she married in 1997 and, a year later, was diagnosed with the rare disease, hypoparathyroidism. Unaware of the implications of diagnosis, she persevered through challenging days, relying on a daily intake of calcium, her lifeline.
Having to leave her career, she became a mom, managing hypoparathyroidism and feeling isolated. In 2019 she discovered the Hypoparathyroidism Association. She became actively involved and assumed a position as a board member. Bari has written and spoken publicly about her journey. She believes her column can help those who feel isolated in their diagnosis.
‘To be an activist is to speak. To be an advocate is to listen. Society can’t move forward without both.” — activist Eva Maria Lewis When I was diagnosed with the rare endocrine…
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