January 8, 2021January 8, 2021
Hypoparathyroidism and Exercise
Health Insights
Exercise is an important part of a healthy lifestyle and can offer many benefits. If you have hypoparathyroidism, however, ... Read more
January 6, 2021January 6, 2021
First Latin America Hypoparathyroidism Study Finds Poor Disease Control
News
People with hypoparathyroidism in Argentina, particularly those with kidney problems and high levels of phosphate in the blood, frequently ... Read more
December 18, 2020December 18, 2020
Looking After Your Heart When You Have Hypoparathyroidism
Health Insights
If you have hypoparathyroidism, you may have a high risk of developing heart problems such as arrhythmia or irregular ... Read more
December 16, 2020December 16, 2020
Long-term Forteo Found to Safely Treat Hypoparathyroidism in Boy With Jacobsen Syndrome
News
Long-term treatment of hypoparathyroidism with Forteo (teriparatide), a lab-made version of the parathyroid hormone, was safe and reduced the ... Read more
December 11, 2020December 11, 2020
How Hypoparathyroidism May Affect Your Heart
Health Insights
Hypoparathyroidism is characterized by low levels of calcium. Low calcium levels can lead to a number of symptoms and may ... Read more
December 9, 2020December 9, 2020
Certain Cancer Therapies May Rarely Lead to Hypoparathyroidism, Case Study Reports
News
Immune checkpoint inhibitors (ICIs), a type of immune therapy used to treat some cancers, may lead to the development ... Read more
December 4, 2020
Hypoparathyroidism and Seizures
Health Insights
Up to 70% of patients with hypoparathyroidism experience seizures. Seizures can be life-altering for these patients but in many ... Read more
December 3, 2020December 3, 2020
NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting
News, syndicated
To empower and equip members of the rare disease community to engage state leaders in matters of importance to ... Read more
December 2, 2020December 2, 2020
Uncontrolled Hypoparathyroidism Leads to Substantial Burden of Illness, Surveyed Physicians Say
News
People with chronic hypoparathyroidism not controlled by conventional therapy may experience a substantial burden of illness and impaired quality ... Read more
November 26, 2020November 26, 2020
Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe
News, syndicated
The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with ... Read more
November 25, 2020November 25, 2020
Specific Thyroid Surgery Procedures Dictate Later Risk of Hypoparathyroidism
News
The specific surgical procedures used when patients undergo thyroid surgery — known as thyroidectomy — dictate the risks they ... Read more
November 19, 2020November 19, 2020
Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry
News, syndicated
Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how ... Read more

January 8, 2021January 8, 2021

Hypoparathyroidism and Exercise

Health Insights

Exercise is an important part of a healthy lifestyle and can offer many benefits. If you have hypoparathyroidism, however, you should be careful because exercise can affect levels of ... Read more

January 6, 2021January 6, 2021

First Latin America Hypoparathyroidism Study Finds Poor Disease Control

News

People with hypoparathyroidism in Argentina, particularly those with kidney problems and high levels of phosphate in the blood, frequently experience inadequate disease control, a study found. The study is ... Read more

December 18, 2020December 18, 2020

Looking After Your Heart When You Have Hypoparathyroidism

Health Insights

If you have hypoparathyroidism, you may have a high risk of developing heart problems such as arrhythmia or irregular heartbeat. There are some steps you can take to lower ... Read more

December 16, 2020December 16, 2020

Long-term Forteo Found to Safely Treat Hypoparathyroidism in Boy With Jacobsen Syndrome

News

Long-term treatment of hypoparathyroidism with Forteo (teriparatide), a lab-made version of the parathyroid hormone, was safe and reduced the need for supplemental therapies in what researchers describe as the ... Read more

December 11, 2020December 11, 2020

How Hypoparathyroidism May Affect Your Heart

Health Insights

Hypoparathyroidism is characterized by low levels of calcium. Low calcium levels can lead to a number of symptoms and may have a negative effect on the heart, among other organs. ... Read more

December 9, 2020December 9, 2020

Certain Cancer Therapies May Rarely Lead to Hypoparathyroidism, Case Study Reports

News

Immune checkpoint inhibitors (ICIs), a type of immune therapy used to treat some cancers, may lead to the development of immune-related hypoparathyroidism, according to a case report. Although rare, ... Read more

December 4, 2020

Hypoparathyroidism and Seizures

Health Insights

Up to 70% of patients with hypoparathyroidism experience seizures. Seizures can be life-altering for these patients but in many cases, they can be successfully controlled. What is hypoparathyroidism? Hypoparathyroidism ... Read more

December 3, 2020December 3, 2020

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

News, syndicated

To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients and their families, the National Organization for Rare Disorders ... Read more

December 2, 2020December 2, 2020

Uncontrolled Hypoparathyroidism Leads to Substantial Burden of Illness, Surveyed Physicians Say

News

People with chronic hypoparathyroidism not controlled by conventional therapy may experience a substantial burden of illness and impaired quality of life, mostly due to persistent symptoms and multiple co-existing ... Read more

November 26, 2020November 26, 2020

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

News, syndicated

The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with rare diseases, negatively affecting their health and well-being, according to ... Read more