September 16, 2020September 17, 2020
Decrease in PTH Levels Right After Thyroidectomy Predicts Calcium Deficiency
News
Having a greater than 65% drop in parathyroid hormone (PTH) levels on the first day after a total thyroid ... Read more
September 11, 2020September 11, 2020
What Do Different Blood Test Results Mean in Hypoparathyroidism?
Health Insights
Hypoparathyroidism can have a number of different causes. Therefore, a battery of tests is usually necessary to diagnose it. ... Read more
September 9, 2020September 9, 2020
TransCon PTH Safe, Effective, May Reduce Need for Other Therapies, Trial Data Shows
News
TransCon PTH, an investigational therapy being developed by Ascendis Pharma, safely normalized calcium and phosphate levels, and reduced the ... Read more
September 3, 2020September 3, 2020
Same But Different Photo Contest Celebrates People With Rare Diseases
News, syndicated
Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography ... Read more
September 2, 2020September 2, 2020
Stem Cells Production Method Could Lead to New Therapies, Study Suggests
News
A novel approach for the production of parathyroid-like cells from stem cells — cells from which all others with ... Read more
August 26, 2020August 26, 2020
International Osteoporosis Foundation Recognizes Research in Hypoparathyroidism
News
The International Osteoporosis Foundation (IOF) recently launched Skeletal Rare Diseases Academy, recognizing two researchers with awards for their work ... Read more
August 26, 2020August 28, 2020
Genetic Testing for Hypoparathyroidism
Health Insights
Genetic testing looks for alterations (or mutations) in a person’s genome. Certain types of changes might indicate the presence ... Read more
August 25, 2020August 25, 2020
Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input
News, syndicated
Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search ... Read more
August 21, 2020August 21, 2020
Intraoperative Parathyroid Imaging in Hypoparathyroidism
Health Insights
In hypoparathyroidism, the body cannot produce enough parathyroid hormone (PTH) from the parathyroid glands. PTH is an important hormone that regulates ... Read more
August 19, 2020August 19, 2020
Permanent Hypoparathyroidism Rare in Children After Total Thyroidectomy, Study Finds
News
Thyroid cancer, central neck surgery and the incidental removal of parathyroid tissue raise the risk for hypoparathyroidism in children ... Read more
August 18, 2020August 18, 2020
EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US
News, syndicated
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare ... Read more
August 14, 2020August 26, 2020
Pseudopseudohypoparathyroidism (Pseudo-PHP)
Health Insights
Hypoparathyroidism is a rare medical condition in which the body cannot produce enough parathyroid hormone (PTH) from the parathyroid ... Read more

Decrease in PTH Levels Right After Thyroidectomy Predicts Calcium Deficiency

News

Having a greater than 65% drop in parathyroid hormone (PTH) levels on the first day after a total thyroid removal increases the likelihood of developing transient calcium deficiency, or ... Read more

September 11, 2020September 11, 2020

What Do Different Blood Test Results Mean in Hypoparathyroidism?

Health Insights

Hypoparathyroidism can have a number of different causes. Therefore, a battery of tests is usually necessary to diagnose it. What each blood test is investigating, and what the results ... Read more

September 9, 2020September 9, 2020

TransCon PTH Safe, Effective, May Reduce Need for Other Therapies, Trial Data Shows

News

TransCon PTH, an investigational therapy being developed by Ascendis Pharma, safely normalized calcium and phosphate levels, and reduced the need for other treatments in adults with hypoparathyroidism, data from ... Read more

September 3, 2020September 3, 2020

Same But Different Photo Contest Celebrates People With Rare Diseases

News, syndicated

Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography competition to raise awareness for rare diseases. Under the theme ... Read more

September 2, 2020September 2, 2020

Stem Cells Production Method Could Lead to New Therapies, Study Suggests

News

A novel approach for the production of parathyroid-like cells from stem cells — cells from which all others with specialized functions are generated — could help find new treatments ... Read more

August 26, 2020August 26, 2020

International Osteoporosis Foundation Recognizes Research in Hypoparathyroidism

News

The International Osteoporosis Foundation (IOF) recently launched Skeletal Rare Diseases Academy, recognizing two researchers with awards for their work in hypoparathyroidism-associated bone changes and pregnancy outcomes. The awards, intended ... Read more

August 26, 2020August 28, 2020

Genetic Testing for Hypoparathyroidism

Health Insights

Genetic testing looks for alterations (or mutations) in a person’s genome. Certain types of changes might indicate the presence of a genetic disease, including some types of hypoparathyroidism, a ... Read more

August 25, 2020August 25, 2020

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

News, syndicated

Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search for new medicines for rare disorders and incorporating more patient ... Read more

August 21, 2020August 21, 2020

Intraoperative Parathyroid Imaging in Hypoparathyroidism

Health Insights

In hypoparathyroidism, the body cannot produce enough parathyroid hormone (PTH) from the parathyroid glands. PTH is an important hormone that regulates phosphate and calcium levels by controlling calcium absorption during digestion, ... Read more

August 19, 2020August 19, 2020

Permanent Hypoparathyroidism Rare in Children After Total Thyroidectomy, Study Finds

News

Thyroid cancer, central neck surgery and the incidental removal of parathyroid tissue raise the risk for hypoparathyroidism in children after total thyroid removal, according to a study. Yet, the ... Read more