November 19, 2020November 19, 2020
Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry
News, syndicated
Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how ... Read more
November 18, 2020November 18, 2020
Weight Loss Surgery May Present Problems for Hypoparathyroidism Patients, Report Asserts
News
People with hypoparathyroidism who wish to undergo weight-loss surgery should consider possible difficulties in maintaining calcium levels within a ... Read more
November 13, 2020November 13, 2020
Staying Motivated With a Chronic Disease Like Hypoparathyroidism
Health Insights
If you have a rare chronic disease such as hypoparathyroidism you sometimes may feel isolated and misunderstood. Symptoms such ... Read more
November 11, 2020November 11, 2020
Hypoparathyroidism Risk Increases After Thyroid, Lymph Node Surgery, Study Reports
News
Central lymph node dissection (CLND), or the removal of lymph nodes in the neck, increases the risk of permanent ... Read more
November 6, 2020November 6, 2020
FAQs about Hypoparathyroidism
FAQs
Receiving a diagnosis of hypoparathyroidism can be difficult for you and your family, especially since information about the disease ... Read more
November 4, 2020November 6, 2020
NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits
News, syndicated
The National Organization for Rare Disorders (NORD)’s RareLaunch training program will host two days of free virtual workshops in ... Read more
October 30, 2020November 12, 2020
FAQs About Natpara for Hypoparathyroidism
FAQs
Natpara is the only approved treatment for patients with hypoparathyroidism. A U.S. recall related to problems with its packaging, which ... Read more
October 28, 2020October 28, 2020
TransCon PTH Granted Orphan Drug Designation in Europe
News
The European Commission (EC) has granted orphan drug designation to Ascendis Pharma’s experimental hormone replacement therapy TransCon PTH, currently ... Read more
October 27, 2020October 28, 2020
UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner
News, syndicated
A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will ... Read more
October 23, 2020October 23, 2020
Hypoparathyroidism and Your Skin
Health Insights
People with hypoparathyroidism may have problems with their skin, in addition to the more serious muscular and nervous system ... Read more
October 21, 2020November 12, 2020
First Person Treated in Phase 1 Trial Testing AZP-3601 for Hypoparathyroidism
News
Note: This story was updated on Nov. 12, 2020, to clarify key scientific concepts. A Phase 1 clinical trial ... Read more
October 19, 2020October 19, 2020
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say
News, syndicated
A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like ... Read more

November 19, 2020November 19, 2020

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

News, syndicated

Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to start a nonprofit and patient registry. They shared about ... Read more

November 18, 2020November 18, 2020

Weight Loss Surgery May Present Problems for Hypoparathyroidism Patients, Report Asserts

News

People with hypoparathyroidism who wish to undergo weight-loss surgery should consider possible difficulties in maintaining calcium levels within a normal range before undergoing the procedure. The case report with ... Read more

November 13, 2020November 13, 2020

Staying Motivated With a Chronic Disease Like Hypoparathyroidism

Health Insights

If you have a rare chronic disease such as hypoparathyroidism you sometimes may feel isolated and misunderstood. Symptoms such as muscle aches or cramps, fatigue, patchy hair loss, and ... Read more

November 11, 2020November 11, 2020

Hypoparathyroidism Risk Increases After Thyroid, Lymph Node Surgery, Study Reports

News

Central lymph node dissection (CLND), or the removal of lymph nodes in the neck, increases the risk of permanent hypoparathyroidism in people with papillary thyroid cancer (PTC) who are ... Read more

November 6, 2020November 6, 2020

FAQs about Hypoparathyroidism

FAQs

Receiving a diagnosis of hypoparathyroidism can be difficult for you and your family, especially since information about the disease may be hard to find. Following are some frequently asked ... Read more

November 4, 2020November 6, 2020

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

News, syndicated

The National Organization for Rare Disorders (NORD)’s RareLaunch training program will host two days of free virtual workshops in December, with the aim of empowering leaders to start non-profit ... Read more

October 30, 2020November 12, 2020

FAQs About Natpara for Hypoparathyroidism

FAQs

Natpara is the only approved treatment for patients with hypoparathyroidism. A U.S. recall related to problems with its packaging, which came in effect in September 2019, has led to continuing ... Read more

October 28, 2020October 28, 2020

TransCon PTH Granted Orphan Drug Designation in Europe

News

The European Commission (EC) has granted orphan drug designation to Ascendis Pharma’s experimental hormone replacement therapy TransCon PTH, currently in development for the treatment of hypoparathyroidism. Medicines receiving this ... Read more

October 27, 2020October 28, 2020

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

News, syndicated

A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be featured on the front cover of an upcoming calendar ... Read more

October 23, 2020October 23, 2020

Hypoparathyroidism and Your Skin

Health Insights

People with hypoparathyroidism may have problems with their skin, in addition to the more serious muscular and nervous system symptoms of the disease. Here is information about how hypoparathyroidism ... Read more